GEMS edition 14

Putting families at the centre of recovery

  • Author: Lydia Trowse COPMI Lived Experience Coordinator  Kerry Hawkins Lived Experience Representative John Clark Lived Experience Representative
  • Series editors: Andrea Reupert and Darryl Maybery (Monash University) on behalf of the Australian COPMI national initiative.

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Quick facts

  • A recovery approach is a crucial element of family-centred practice.
  • Services that are driven by the needs of the families and children who use them, will better facilitate recovery for the individual and help reduce mental health problems developing in children.
  • System and organisational changes that acknowledge the needs of families are critical.

Research summary

User-driven services

Historically mental health treatment services focussed on treating people’s illness and symptoms, in isolation from their families and communities.1 The capability of people with mental illness to work, learn, form relationships, raise children and live independently was underestimated.2 Today, recovery and wellbeing principles encourage people’s resourcefulness and selfdetermination, and support individuals to build their own support system around their personal goals, needs and priorities.3 Recovery is not necessarily getting back to life as it was, but is instead, a discovery of a new life. The term ‘user-driven’ (sometimes called ‘consumer-led’) in treatment and support services is central to recovery and can mean a number of things:

  • People who use services having choice, influence and control over their lives.4
  • Services that are driven by users’ needs, priorities and expectations.3
  • Peer support services being accessible to all who need them.5
  • People who use services and their families being able to participate in policy development, service planning and development, evaluation and research.6

Family-centred practice

While a personal recovery approach is important, the acknowledgement of families where a parent has a mental illness emphasises the need for family-centred practice, including extended family members. Approaches to family-centred practice include:

  • Services that work with the family to strengthen their individual resources.
  • Services and policies that work with the whole family as a unit.7

Core elements of family-centred practice

There are four core elements of family-centred practice:

  • The centrality of the family as the unit of attention.
  • An emphasis on maximising families’ options and choices.
  • A strengths, rather than a deficits, perspective.
  • Cultural and spiritual sensitivity.8

Also important is the impact of the illness on the individual as well as on the whole family, and the need to support all. It is essential to acknowledge that all family members are potentially service users (for their own issues) and service providers (by providing support to the person with the mental illness).

Recovery, strengths and vulnerabilities

A recovery approach is a crucial element of family-centred practice. Indeed, parental functioning can be intimately related to the recovery process. It has been found that children can give parents the strength and will to ‘keep going’ and provide parents with meaning and purpose, both key elements to recovery.9 Parenting may also provide opportunities for meaningful interactions and activities with others in the community.9 Focusing on family strengths does not mean that problems can be ignored. The vulnerabilities of families need to be openly and sensitively discussed in order to help families develop strategies to enhance their strengths and overcome the vulnerabilities they may experience.10 At the same time, a focus on family vulnerabilities and strengths also needs to acknowledge the responsibility of services and the community to provide appropriate resources and support.

Being truly family-centred

Sometimes what is described as family-centred practice is really mother-centred practice (ignoring fathers), it can be nuclear familycentred (ignoring the role of extended family members such as grandparents), it may be parent-centred (rendering children invisible and inaudible) or it may be child-centred (reinforcing parental feelings of failure and shame).7 Services that are driven by the needs of the families and children who use them, will better facilitate recovery and help reduce mental health problems developing in the children.11,12

Practice implications

Organisational history, professional boundaries, workforce skill limitations, narrow performance indicators (e.g. that focus on symptom management) and funding models that focus only on the person with the illness are among the barriers that constrain the ability of services to respond to the needs of parents and their children.13 A common enabler across systems, organisations and workers is to utilise the ‘Principles and Actions for Services and People Working with Children of Parents with a Mental Illness’ as a guide to improve system responses and practice.14

Enablers for systems:

  • Review performance indicators and funding models with a family-centred lens.13
  • Develop policies that acknowledge the importance of families, and the role of workers in supporting families.14

Enablers for organisations:

  • Commit to the training and resourcing of professionals so that they feel confident in working with parents with mental illness and their families.15 
  • Improve collaborative practice between existing agencies which can ‘close the gaps’ and address the needs of parents with a mental illness and their families.16
  • Consider the physical nature and emotional climate of the service to ensure it is welcoming to children and adults.7
  • Revise policies, job roles, team organisation and the allocation of resources over time to ensure that services can meet family needs.17
  • Involve people with lived experience of mental illness and their families in the education, training, development and evaluation of the mental health workforce.18 This includes employing people with lived experience.

Enablers for workers:

  • Reflect on values. Values based on compassion, respect, integrity and self-determination are the foundation of family-centred practice, while personal qualities include a high level of emotional intelligence, interpersonal skills and self-awareness.7
  • Feel and display optimism as this will nurture hope in families.7
  • Develop an equal and creative relationship between people using services and their families.17
  • Engage in reflective supervision in order to consolidate worker strengths and partner with supervisors to work on areas that need development.19

References

  1. Bracken P, Thomas P. Postpsychiatry: A new direction for mental health. British Medical Journal 2001; 322, 724-727.
  2. Trainor J, Pomeroy E, Pape B. A framework for support: 3rd Edition. Canadian Mental Health Association. Totonta; 2004.
  3. Ning L. Building a ‘user-driven’ mental health system. Advances in Mental Health 2010; 9: 112-115.
  4. World Health Organization. User empowerment in mental health – a statement by the WHO Regional Office for Europe. Copenhagen: Denmark; 2010.
  5. Centre of Excellence in Peer Support. The Charter of Peer Support. Melbourne: Victoria; 2011.
  6. Australian Government Department of Health and Ageing, National Practice Standards for the Mental Health Workforce, Standard 2: Consumer and Carer Participation. National Mental Health Strategy; 2002
  7. Arney F, Scott D. Working with vulnerable families: A partnership approach. Cambridge University Press; 2010.
  8. Allen RI, Petr CG. Rethinking family-centred practice. American Journal of Orthopsychiatry 1998; 68: 4–15.
  9. Nicholson J. Parenting and recovery for mothers with mental disorders. In Levin, B.L., Becker, M. (Eds.) A public health perspective of women’s mental health. Springer. New York; 2010.
  10. Solantaus T. Let’s Talk About Children Module 1: When the parent has mental health problems. Retrieved 15 March 2013: http://www.strong-kids.eu/rpool/resources/restricted/KS_Module_1_Lets_Talk_about_Children_eng.pdf
  11. Shepherd G, Boardman J, Slade M. Policy paper: Making recovery a reality. Sainsbury Centre for Mental Health; UK; 2008.
  12. Maybery D, Reupert A. COPMI GEMS: The importance of being child and family focussed. Monash University; 2008. Retrieved 15 March 2013: http://www. copmi.net.au/images/pdf/Research/gems-edition-1-july-2008.pdf
  13. Scott D. Think child, think family. Australian Institute of Family Studies. Family Matters; 2009; 81: 37-42.
  14. Australian Infant Child Adolescent and Family Mental Health Association. Principles and actions for services working with children of parents with a mental illness. Stepney: Australian Infant Child Adolescent and Family Mental Health Association; 2004. Retrieved 15 March 2013: http://www.copmi.net.au/images/ pdf/principles-and-actions.pdf
  15. Cowling V. Meeting the support needs of families with dependent children where the parent has a mental illness. Family Matters 1996; 45: 22-25.
  16. McLean D, Hearle J, McGrath J. Are services for families with a mentally ill parent adequate? In Gopfert, M., Webster, J., Seeman, M. Parental psychiatric disorder: Distressed parents and their families. Cambridge University Press; 2004.
  17. Social Care Institute for Excellence. At a glance 18: Personalisation briefing: implications for community mental health services. London; 2009. Retrieved 15 March 2013: http://www.scie.org.uk/publications/ataglance/ataglance18.asp
  18. Deakin Human Services Australia. Education and training partnerships in mental health. National Mental Health Strategy: Australia; 1999. Retrieved 15 March 2013: http://www.health.gov.au/internet/main/publishing.nsf/Content/C88A8F732ED31670CA2571FF001FC989/$File/learn.pdf
  19. Shahmoon-Shanok R. The supervisory relationship: Integrator, resource and guide. Zero to Three. 1991; 12(2): 16-19.

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